Monday, 24 February 2020

UK opportunity to grow Intergrative Medicine

Back in October I blogged about news that the European Congress for Integrative Medicine 2020 will be coming to the UK for the first time now in Feb 2021 - see here(i). It includes 'Lifestyle Medicine & Social Prescribing', 'Integrative Oncology', 'Nutrition, Gut Health & the Microbiome', 'Planetary & Environmental Pollutants & Health' and 'Arts and Health.'

Well a video has just come out of Dr Michael Dixon from the College of Medicine talking about the conference, our current healthcare system and the importance of integrative medicine (see below). He calls for a level playing field between conventional and complementary medicine. 

One example he cites is how many patients take many different drugs and that their is virtually no research to show the impact they have on each other. Meanwhile there is no NHS funding for research into complimentary medicine, so he argues it 'is a little bit unfair to suddenly say to complimentary medicine where is the evidence when we are not prepared to finance the evidence we need.'

Dr Dixon is the Clinical Lead for Social Prescription and sees social prescribing as very much a part of intergrative medicine. I agree that this is a significant improvement but see my earlier blog about Social Prescribing and why we need to take very good care about such schemes: https://myunexpectedguide.blogspot.com/2019/12/social-prescribing-for-people-living.html

In a WHO research paper last year European countries came low when compared with other countries in terms of integrative medicine and sadder still the UK came lower still in terms of research or support from Government (ii). This conference is clearly a chance to change things.

The conference dates in London are in Feb 2021. You can also see more on their website: https://www.ecimcongress.com/ 





 
Notes

(i) https://myunexpectedguide.blogspot.com/2019/10/european-congress-for-integrative.html
(ii) https://www.who.int/traditional-complementary-integrative-medicine/WhoGlobalReportOnTraditionalAndComplementaryMedicine2019.pdf?ua=1

Saturday, 22 February 2020

Best three books when you are first diagnosed?

I’ve read lots and have many books looking at cancer from many different viewpoints, but these are my favourites in terms of helping plan how to deal/manage a cancer diagnosis. This blog is an update on a similar blog from a year or so ago.

Sophie Sabbage "The Cancer Whisperer” - Sophie was diagnosed with late stage 'incurable' lung cancer and embarked on an amazing journey of healing. The book covers her relationship with cancer, fear, guilt, her research, diet and more. I particularly loved the idea of 'cancer whispering’; instead of going to war with cancer we can learn from it and choose our own response to it. I’ve heard Sophie speak several times and have been fortunate to go on one of her workshops. I totally rate this book and have bought it for a number of others diagnosed with cancer, family and even my GP.  


Sophie says: 'This book is for the cancer patient who wants to remain a dignified, empowered human being even when your doctors and diagnosis are scaring the hell out of you. It is also for the cancer patient who has a hunch that there is something for them to learn, gain or even be transformed by - if they just knew how to relate to this disease differently to the way most of society does. It is for the cancer patient, perhaps any patient.'

Fi Munro "How Long Have I Got? The Story of a Terminal Cancer Patient" - this book has joined my top three books as it is not only full of positivity, I just love what she writes about and the way she sees the world. It is totally inspiring to me and I have taken lots from it on my own journey. However one warning is that it is a tough read; she tells it like it is and I know some folks would rather not know until they may have to face it.

Sophie Trew, founder of Trew Fields captures alot of what I feel: "Fi is a rare flashlight in the tunnel of illness. She shows it's possible to live an extraordinary life with cancer. She empowers, inspires and fills me with hope. We're all alive but how many of us are truly living? Fi's story could save lives and transform beliefs."

See more about Fi in my blog here: https://myunexpectedguide.blogspot.com/2020/02/fi-munro-time-to-live.html

Kelly A. Turner “Radical Remission, Surviving Cancer Against All Odds” - Dr. Kelly A. Turner’s research involved travelling to ten different countries to interview fifty holistic healers and twenty radical remission cancer survivors about their healing practices and techniques. Her research continued by interviewing over 100 Radical Remission survivors and studying over 1000 of these cases. Her evidence presents nine common themes that she believes may help even terminal patients turn their lives around. Each of those themes are worth consideration.

1. Radically changing your diet.
2. Taking control of your health.
3. Following your intuition.
4. Using herbs and supplements.
5. Releasing suppressed emotions.
6. Increasing positive emotions.
7. Embracing social support.
8. Deepening your spiritual connection.
9. Having strong reasons for living

What would you recommend?

Maybe I should take 'three' out of the title of this blog as there are many other books I'd like to add to this list (some of which are elsewhere in this blog!)- but hey these two are also useful:

Patricia Peat in her book, “The Cancer Revolution, Integrative Medicine, The future of cancer care” this one is a great overview of possible treatments and as the author writes it looks at 'integrating the best that medical science has to offer with a comprehensive, holistic approach that supports your body through whatever treatment you choose'. So if you are looking to compliment conventional treatment then this is a good place to start.

Chris Wark “Chris Beat Cancer” - Chris is a stage 3 colon cancer survivor who opted out of chemotherapy after surgery. He provides the toxin-free diet, lifestyle, and therapy guidelines he used to help himself heal. His strategies include a radical diet where he takes ‘massive action’ to heal plus lifestyle changes; and mental, emotional, and spiritual healing, as well as advanced integrative therapies. I love Chris’s can-do approach and also his regular videos which include in depth inspiring interviews with cancer survivors about their approaches.

Monday, 17 February 2020

National Prostate Cancer Audit: where does Glos stand?

The National Prostate Cancer Audit collects clinical information about the treatment of all patients newly diagnosed with prostate cancer in England and Wales and information about their outcomes. The aim is to improve the care received by patients with prostate cancer. They do this by making recommendations to prostate cancer services based on their findings.
 


The reports include patient reported outcomes for both surgery and radiotherapy for prostate cancer. I understand that it is very unusual to see data like this where centres can be directly compared in terms of outcomes across the whole patient population, rather than just in a trial. Well here’s the website with the reports that came out last month: https://www.npca.org.uk/

See the Executive Summary plus infographic at: https://www.npca.org.uk/content/uploads/2020/01/NPCA-Annual-Report-2019_Executive-Summary-090120.pdf

You can see Gloucestershire is about average on most of the results: https://www.npca.org.uk/content/plugins/mixd-wp-audit-outcomes-npca/public/mixd-wp-audit-outcomes-pdf.php?nonce=25ffde158a&action=generate_pdf&filename=gloucestershire-hospitals-nhs-foundation-trust&orientation=portrait&timespan=2017-2018

The figures show numbers of men in various stages of prostate cancer and impact after treatment, for example the proportion of patients who experienced a severe gastrointestinal complication with 2 years of radical radiotherapy is around 10% in Glos.

I wonder how Glos interprets these results and what they might mean for investment. I would be interested to hear more.

Saturday, 15 February 2020

Exciting times; more cancer exercise opportunities coming soon

Meeting in Gloucester this week
Last week, myself and Stephen Rowley, met again with Macmillan in Gloucester. Stephen has been working with them and others to get more Cancer Exercise across Gloucestershire and in recent months I’ve joined in to see if we can really raise the profile of exercise in Gloucestershire. 

Some might remember in my first blog on exercise I shared some of my frustrations that the impact of exercise was not mentioned to me when I was diagnosed - this is despite research results like a Swedish study showing those who walked or cycled for at least 20 minutes each day had a 39% lower risk of dying from prostate cancer and a 30% lower risk of dying from any other cause compared to the less active men (i). 

39% is awesome  - if it was a tablet then health services would be throwing it at us. Yet many thousands £££s are spent on chemo drugs and other treatments with nothing like the same health outcomes - why so little time and energy given to exercise? I think ‘why' might be for another blog, but would love to hear from folks with their own views! One factor is clearly the £millions health overspend in Glos. 

Certainly things are changing as I write in one of my earlier blogs - there is an increasing awareness of the need for an holistic approach (ii).

Jo Lawrence cartoon
Well the good news locally is that exercise is being taken more seriously - it is taking folks like Stroud District Council, Macmillan and others to look at how we can invest in communities so that those of us living with cancer know what can be done with exercise. In previous blogs I mentioned the website Stephen has established with details of the groups across the County - see here - they have focused on rehab after treatment (iii). 

Well now in the next few weeks we are hoping to have nine new exercise folks trained in cancer exercise - and hoping to expand the scheme with more types of cancers and prehabilitation. We will need to look at how we can establish new groups - it is a bit chicken and egg. Do we set up classes, then don’t have enough folk so it costs more or do we try and find the folk and have them wait a few weeks before we can launch? The groups can take a few months to break even so it requires funders to invest in the future - once established they often pay for themselves with the £3.00 or so session fee. This is not a drain on expenses this is about those statistics that show exercise leads to better outcomes - and quite possibly less impact down the line on health services?

All this, also fits with the national strategy for more personalised “Prehabilitation” which came out last year in new guidance published by the Royal College of Anaesthetists, Macmillan Cancer Support, and the National Institute for Health Research (NIHR) Cancer and Nutrition Collaboration. If you are not familiar with the term prefab, it is about preparing people for cancer treatment by optimising their physical and mental health through needs based prescribing of exercise, nutrition, and psychological interventions. In effect this is about 'priming' your own recovery before your treatment even begins. The report (iv) is well worth a read as it sets out the benefits and challenges.

So we are moving forward and 30,000 leaflets are due back from printers in next couple of weeks or so; hopefully we will then be putting in place a comprehensive marketing strategy. If anyone out there wants to help do please get in touch. Meanwhile I'm keeping up with daily exercise incl 10 mins of rebounding!
Notes

Friday, 14 February 2020

The sanctuary garden in Sandford Park; green spaces improve survival rates for cancer?

My radiotherapy has started and one of the things that is important to help the treatment is exercise. Everyday I am managing something but several times I have made my way to Sandford Park. It is a couple of minutes walk from the Oncology department and there is a new sanctuary garden there. My very rough and ready minute-long film below gives a very brief taster.



The wonderful sanctuary garden in Sanford Park was established by LINC (Leukaemia and Intensive Chemotherapy Fund), a local charity based at Cheltenham General Hospital (i). The garden is a mix of perennial planting which has been chosen specifically for environmental benefits as well as attracting pollinators such as bees. Clearly in February it is still largely asleep, but still has a wonderful sense of peace - and I will be revisiting later this Spring and Summer.


Randwick woods
Now I’m sure anyone reading this will know that research has found all sorts of links between green spaces and wellbeing (i) so I won’t repeat those here. I was however intrigued to discover research looking at how green spaces can have a direct impact on cancer or on intermediary determinants of cancer. It seems some reduction in the risk of cancer is about enabling healthy lifestyles and health behaviours (iii). 

There is also some interesting research showing that living near urban green spaces can reduce breast cancer risk but living near agricultural areas was associated with an increased risk of breast cancer (iv). This suggests that how the green space is used is important. Similarly research has highlighted possible negative impacts like too much ultraviolet light. Lastly some research shows that green spaces may improve survival rates in ill or convalescent people, and be beneficial for cancer remission (v). 

Randwick woods
For me there is almost nothing more healing than green spaces; a walk in the woods can be beyond wonderful! Thank you LINC for creating such a lovely space that I am sure will grow more and more into a wonderful sanctuary space.

To finish I want to mention that LINC have a licence to maintain the garden and are seeking volunteers to help with the garden’s maintenance. Do make contact with them if you are interested: 0300 422 4422 ghn-tr.linc@nhs.net

Notes
(ii) Some examples:
Access to green and open spaces and the role of leisure services: 
https://www.kingsfund.org.uk/projects/improving-publics-health/access-green-and-open-spaces-and-role-leisure-services
UK researchers found moving to a green space had a sustained positive effect, unlike pay rises or promotions, which only provided a short-term boost:
https://www.bbc.co.uk/news/science-environment-25682368
Exposure to Greenness and Mortality in a Nationwide Prospective Cohort Study of Women
https://ehp.niehs.nih.gov/doi/10.1289/ehp.1510363
(iii) Urban space and cancer: https://bmjopen.bmj.com/content/8/2/e018851

Thursday, 13 February 2020

Following my intuition; no to Melatonin


A message that has come loud and clear from complimentary therapists and many cancer thrivers is to trust my intuition. Time and time again in blogs, I also read how that has been key to many folks way of thriving. In the last blog I mentioned Fi Munro, she writes on her website; "Guided by my instinct, I began to make changes" (i). Sophie Sabbage devotes several pages in ’The Cancer Whisperer’ to ‘Using Your Intuitive Compass’. While Kelly Turner in her book ‘Radical Remission’ identifies ‘Following Your Intuition’ as one of nine key factors that can unlock a pathway to dramatic healing and has a whole chapter exploring it.
In this blog I look at intuition and how despite melatonin looking like a great option for me, it does not appear to be the right time.

Intuition is all about knowing something instinctively without the need for conscious reasoning; about feeling it in our bones or gut. Interestingly scientists have found that a type of cell found in our brains also exists in our digestive tract; no wonder we have ‘gut feelings’. There is also science to show that intuitive decisions are made in the right side of the brain and in those reptilian parts that have been around since prehistoric times. It is the left hand side that is slower and more analytical. Both have their parts to play.

We’re not taught intuition at school, indeed we seem to rely less and less on our intuition. Unlike our ancestors, we don't follow intuitive guidance from our dreams and we rely all too readily on what doctors tell us to take or we trust the processed foods in our supermarkets. Yet there are studies that show that when we make big life decisions like buying a house, trusting our intuition leads to better outcomes than our logical, thinking brain.

Sophie at Penny Brohn AGM
Fear can block our intuition. In a talk at Penny Brohn’s AGM last November Sophie Sabbage spoke about the difference between surviving and thriving. She says cancer thrivers may be riddled with disease and wellness but still find peace. Whereas survivors may be living free of cancer but are not ‘free’ as they are relentlessly victimised by what happened. The difference is the state of mind. Survivors, for example,  often live with fear. It is fear that can block us - and our intuition. 

It is our 'gut brain’ that reacts when our fear is triggered, whether the threat is real or that we are just afraid of letting go of what you now have. This is also where we will feel the courage to act in spite of our fears. It is a powerful reminder of how fear can impact so much on our health and how important it is to work with it - I’ve looked a little at fear in previous blogs (ii) - and it is an ongoing process! Assuming we can unblock some of that fear where do we begin in terms of supporting and strengthening our intuition?

Intuition is not about ignoring knowledge and wisdom around us.  Sophie Sabbage suggests we start by listening to the experts as that will help guide us. Then intuition can come in. Sophie calls it perhaps our ‘most important navigation tool’ but says it is a muscle that needs exercise. Both Sophie and Kelly list a number of ways that can help (both books are more than worth a read) including:

- keeping a journal to help the unconscious mind open, 
- talking it through with a friend or therapist to empty our cluttered heads,
- meditation,
- guided imagery,
- and dreams.


Using my intuition

Well sometimes it feels a bit rusty but I am getting better at this. When first diagnosed I did as Sophie suggested (and my naturopath), I took time to read and consider options. My initial reaction of wanting surgery changed when I listened in to what I really felt - of course that is not to say someone else might find surgery the absolutely right path for them (iii). There are many other examples along this journey and in other parts of my life. It seems when you become more aware of your self and give space then intuition bubbles forth. In this next bit I share another example...


The wonders of melatonin

I have, for a while, been gathering data around the effectiveness of melatonin(iv). I have been excited to learn about this natural hormone, melatonin. It is produced mainly by the pineal gland and is thought to have key benefits like being an antioxidant that boosts the immune system, and also an anti-inflammatory compound. Melatonin also regulates levels of human oestrogen and growth hormone in the body; these are key in cancer process. ​​It​ ​has​ ​been​ ​shown​ ​to​ ​inhibit​ ​angiogenesis​ ​(v) and ​may​ ​have​ ​direct​ ​cytotoxic​ ​effects​ ​on some​ ​types​ ​of​ ​cancer​ ​cells,​ ​notably​ ​melanoma​ ​cells.​ ​It​ ​is​ ​also commonly​ ​used​ ​for​ ​the​ ​treatment​ ​of​ ​jet​ ​lag​ ​and​ ​for​ ​insomnia - and has no known toxic side-effects. 

In my earlier blog (iv) I quoted research and Chris Woollams at Canceractive, saying that it was good for hormonally driven cancers - and likely to be good to take while having radiotherapy. Indeed survival​ ​rates in a small study were ​significantly​ ​greater​ ​for​ ​subjects​ ​receiving the​ ​melatonin with their radiotherapy than those who didn’t (vi).​ However, another randomised trial I came across when recently looking at melatonin again, compared radiation​ ​treatment​ ​for​ ​metastatic​ ​brain​ ​cancer​ ​with​ ​and​ ​without​ ​melatonin​ ​and​ ​found​ ​no benefit​ ​of​ ​the​ ​melatonin​ ​(vii).​ ​

In summary there are at least a​ ​dozen​ ​phase-2​ ​clinical​ ​trials​ ​using​ ​melatonin​ ​either alone​ ​or​ ​in​ ​combination​ ​with​ ​other​ ​agents​ ​and​ ​five​ ​phase-3​ ​trials​ ​involving​ ​random assignment​ ​of​ ​subjects​ ​to​ ​melatonin​ ​versus​ ​some​ ​type​ ​of​ ​control​ ​group.​ ​Nearly all ​supporting​ ​evidence​ ​for​ ​the use​ ​of​ ​melatonin​ ​has​ ​come​ ​from​ ​its​ ​addition​ ​to​ ​chemotherapy,​ so it seems more work is needed regarding radiotherapy. Nevertheless there was more than enough info about the wonders of this hormone to give very serious consideration to it. To be frank I was excited by the possibilities not just for radiotherapy but for the cancer itself.

Intuition comes into play
You can’t buy melatonin in this country although it is not illegal to use here. I was therefore delighted that a friend who was travelling to the States, was able to get me a couple of bottles of melatonin. They arrived in time to try before my radiotherapy started. I planned to start with 5mg and work up to 20mg a couple of weeks before radiotherapy. In short I tried it for three nights and I didn’t sleep well; not the dreams but discomfort and restlessness. It felt very strange as I normally sleep very well and surely this hormone was about even deeper sleep? I intuitively felt melatonin wasn't right for me at this time.

On the fourth day I was seeing a naturopath who dowsed for some of the supplements I was taking. I hadn’t mentioned the discomfort around melatonin, but she picked it out as one of those supplements  that may not be right for me now. I liked this confirmation of my earlier intuition.

Dowsing is of course not recognised by most of the medical establishment. The practitioner will often use a pendulum and tap into intuition and a 'sixth sense'. Some might also say that the pendulum acts as a form of receiver and transmitter, from your higher guidance, guardian angels and spiritual teachers. As the pendulum moves, you can get answers to questions. It clearly requires faith in us having intuitive senses - something that is recognized by many other cultures worldwide. For me, I have been surprised on a number of occasions how dowsing seems to match my intuition. Indeed I saw it described by one practitioner as ‘on-demand intuition’, so perhaps I should not be so surprised.

Anyway I’ve read lots about others tolerating melatonin really well, but some don't - two friends (one with prostate cancer) also found melatonin not suitable for them. Sophie Sabbage’s advice earlier seems good, listen to experts then your intuition.

So melatonin is off the menu for me for now - and I will continue to work on my intuition!


3.12.22: Just came across this video clip re intuition from Stacy Solodkin and her experience of cancer: https://youtu.be/2va6Ok07GKg

Notes

(v) Lissoni,​ ​P.,​ ​et​ ​al.​ ​Anti-angiogenic​ ​activity​ ​of melatonin​ ​in​ ​advanced​ ​cancer patients.​ ​Neuroendocrinology​ ​Letters,​ ​2001,​ ​Vol.​ ​22,​ ​45-47 https://www.ncbi.nlm.nih.gov/pubmed/11335879
(vi) Lissoni,​ ​P.,​ ​et​ ​al.​ ​Increased​ ​survival​ ​time​ ​in​ ​brain​ ​glioblastomas​ ​by​ ​a​ ​radio- neuroendocrine​ ​strategy​ ​with ​ ​radiotherapy​ ​plus​ ​melatonin​ ​compared​ ​to​ ​radiotherapy alone.​ ​Oncology,​ ​1996 https://www.ncbi.nlm.nih.gov/pubmed/8570130?dopt=Abstract
(vii) Berk,​ ​L.,​ ​et​ ​al.​ ​Randomized​ ​phase​ ​II​ ​trial​ ​of​ ​high-dose​ ​melatonin​ ​and​ ​radiation therapy​ ​for​ ​RPA​ ​class​ ​2​ ​patients​ ​with​ ​brain​ ​metastases​ ​(RTOG​ ​0119).​ ​Int.​ ​J.​ ​Radiat. Oncol.​ ​Biol.​ ​Phys.,​ ​2007,​ ​https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3076305/

Sunday, 9 February 2020

Fi Munro: "Time to Live"

Fi Munro at Trew Fields 2019
One of those folks who have inspired me to connect, feel and think more deeply about cancer is Fi Munro. You may have seen my clip in a previous blog (i) where she shares from the heart how, when we start to live like we are dying, we can come alive. As she says on her website: "Choosing to live like you are dying is about embracing the fact that we all have only one life and deciding to make the choice to start truly living for today."

Well I’ve since then read some of her blogs, book and Facebook posts about her own journey and wow, what a journey (ii). It includes life and death situations, multiple organ removal, a new immunotherapy trial and so much more. Her heart-felt honesty, courage, humour, love, connection, insights and more are beautiful, terrible and extraordinary. 

Fi's book
Fi has shared bits of her life from January 2016, when she was diagnosed at aged 30 with ’terminally’ Stage 4 B Ovarian Cancer. She writes about how to live well with cancer rather than being defined as potentially dying from it and how in her words, “My cancer diagnosis saved my life.”

Last week a local newspaper where she lives published a photo by Fi's husband, Ewan (iii). He took a picture of Fi slumped in the bath with a bowl floating nearby in case she felt she was going to be sick. It is a very powerful image indeed. The paper also included some of her Facebook post where she writes:
"Tonight I asked Ewan to capture a photo of the reality of what I’m going through - of what so many people with cancer are going through day in day out - it is so f***ing hard. When I’m out and about people see the impression of someone well. They see the make up and the clothes. They see the smile. They see what they want, or what they ‘need’, to see. “Daily I hear the words ‘but you look so well…’. Sometimes it’s a statement. Sometimes it’s more of a plea. But what these words fail to acknowledge is the pain and effort endured to make it through one more day....The hours of pain, of vomiting, of suffering, of fear, or the silent prayers that tomorrow will be a better day, that maybe if I put on my make up, get dressed nicely in my favourite clothes and smile wildly that I can convince my body to feel well too. Many of my evenings are spent in agony, vomiting, consumed by spasms of pain so extreme that morphine won’t even touch them. I spend hours with my head down the toilet or sitting in the bath, a bowl floating beside me to catch the inevitable waves of sickness. I am described as ‘brave’ or ‘inspirational’ but, in truth, I have no choice. I have no choice but to wake up each day and face this because it is my reality. It is the hand I have been dealt. But tonight I find myself reflecting that those that stand beside me, my husband Ewan, my loved ones, they are the truly brave and inspirational...because they do have a choice and yet here they are, beside me, holding me, every step of the way.”

Fi wrote on her Facebook after the article came out: "Well...if you’d told me four years ago that I’d be front cover of a newspaper, naked in the bath AND on a two page spread also naked in the bath I’d have freaked right out! Naked! BUT...now? Not so much! This is the reality of stage four cancer and I am so happy there is media out there willing to portray it...no longer is it being hidden behind closed doors, shrouded in secret and shame...this is what millions of us face every single day and I stand with every single one of you".

I have not experienced any of those symptoms with my cancer and I am not stage 4, but I hugely welcome the honesty with which Fi shares her journey. I know a friend who has felt far less alone because of such writing. But also for me, Fi manages to capture that balance perfectly between the reality of the situation and positivity. In a previous blog about climate change and cancer I touch on the dangers of trying to be positive all the time (iv). We all need to acknowledge, breathe through the grief, the fears and more as well as find those places of hope, gratitude and beauty. 

As she comes through this latest challenges she asks that we see her in wellness; that is strangely so easy, as even as she writes I feel her zest for life.

I’ve heard Fi talk a number of times at Trew Fields Festival and she has this amazing positivity, passion and energy that is literally infectious. At one point in a talk she spoke with a panel of Stage 4 'thrivers' about the Four Minute mile (see video below), how it was seen as impossible but when one person broke the 4 minutes the following year many people did. Similarly many are told stage T4 is a death sentence yet many like Fi have long outlived what the medical profession had predicted. When Fi finished the talk a woman near me turned and said something along the lines of; “That woman has just given me a bucket of reality, positivity and hope all in one go”.


In her blog (vi), Fi muses on whether there is a stage 5 cancer; "What if cancer has a stage five after stage four? What if Stage Five is finding out what you are about. What if Stage Five is about LIVING?"

There is a lots more in her book, “How Long Have I Got?’ - and she has certainly impacted my own cancer journey - for example she reminds us of the obvious, that we are all terminal. And reminds us that our life is precious, oh so precious. This is the time to live.

I strongly recommend her book, Facebook and blog. Thank you Fi.

Update 14/06/20: Fi's talk at Trew Fields last year has just been uploaded here: https://vimeo.com/372598056

Notes
(v) Trew Fields Festival last year with Fi at about 13.40: https://myunexpectedguide.blogspot.com/2019/09/trew-fields-festival-my-long-film.html


See also BBC 3 minute film with Fi: https://www.bbc.co.uk/programmes/p06tn4yk

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