Showing posts with label Climate Change. Show all posts
Showing posts with label Climate Change. Show all posts

Friday, 3 July 2020

Cancer treatment and climate change

Dr Richard Dean - art exhibition in Stroud (2008)
In an earlier blog I looked at fear and hope and how, for me, there are similarities between cancer and climate change (i): “...climate change and cancer - both are a direct result of our lifestyle. Furthermore the progression of climate change and the delayed effects of our emissions give us a sense of unreality - this is so like a cancer diagnosis before we see debilitating symptoms. It seems to me all this is a huge opportunity to bring changes to the way we live that enhance, not just in our own health but also that of the planet."

In this blog I start to explore what is beginning to be done in terms of thinking about climate and health - and cancer in particular. It is a bit of a hotch potch but some disturbing, fascinating and hopeful facts are revealed here.
There have been a fair few big conferences with titles like "Reframing food, health and communities through the lens of sustainability” and some health authorities like Manchester and Newcastle have recognised the Climate Emergency (ii). Indeed the NHS was one of the first national health systems to produce a carbon reduction strategy 10 years ago and started measuring emissions in 2007. It is estimated the NHS produces 5.4% of the UK’s greenhouse gases (iii). 

I want to note up front that this blog barely skims the surface of this huge topic; so much impacts on our health. Indeed it was one of the areas that led me to support Green Party policies and then to become a District councillor for 8 years. It seemed to me other parties had policies that worked against health whereas Greens looked at how each policy interacted on another. So health isn’t just about medical services it is about public spaces, 20mph in all towns to reducing casualties, cutting pesticide use, a precautionary principle, more walking and cycling and so much more. 

Nothing like what is needed is being done. But here I will cover some of the exciting ways forward in our health services - starting with the Royal College of General Practioners (RCGP) - but please if someone reading this knows about other actions I would welcome links. 


General Practices going green

In September 2019 the RCGP Governing Council acknowledged the climate crisis and the catastrophic effect on human health of not acting decisively and urgently. They accepted a duty to provide leadership, and urgently escalate its action at local, regional, and national level to decarbonise and promote environmental sustainability. Before then, work had started with others and they were a founder member of the UK Health Alliance on Climate Change. This Alliance has developed the Green Impact for Health toolkit (iv) to help every general practice improve their sustainability and environmental impact. Terry Kemple, the former RCGP president and sustainability lead comments: “We want to promote actions in our practices for ourselves and our patients that are good for youthem and good for the planet.”

Frome Medical Practice has been leading the way - in conjunction with the RCGP England Severn Faculty and with the support of Ecotricity and Pukka, they hosted a Green Impact for Health Conference (v) - the first of it's kind in the country this last February. The aim of the Conference was to inspire and share ideas and support other practices who have already signed up to undertake the NUS / RCGP Green Impact Toolkit or who are considering doing so. It was indeed inspiring to see these pioneers. The presentations are shared online (vi) and you can see a short intro film here: https://vimeo.com/392167805


How we can make a difference?

They identified several key areas to consider:
  • Show how health outcomes will be badly affected
  • Use hard to refute facts to show the need for action
  • Use a real life story to cut-through apathy
  • Be clear about the behaviours that need to change
  • Show that any reduction has an impact on health outcomes
  • Show that small actions can have an impact on reduction
  • Give people simple actions, relevant to daily life, ideally with measurable results to maintain belief in positive impact on health outcomes
  • Have local, achievable goals
  • Show the efforts of Government and other authorities to change

Local artist Russ
Tackling energy use?

Well one of the obvious areas being considered is ‘Green’ electricity. Stroud-based Ecotricity started the first green electricity company in the UK around the mid-1990s. They could see that conventional electricity is responsible for 30% of Britain’s carbon emissions; our biggest single source as a nation, and therefore the biggest single thing we can change. Exciting news is they plan to have 1400 GP practices signed up by end of the year. Energy and energy conservation are critical.


Healthy food for a healthy planet?

This is another obvious area to consider re health. Rob Verkerk of the Alliance for Natural Health writes: "Food production has become a central issue as we consider how to tackle climate change along with associated environmental degradations and damage”. In an article from last year (vii) he goes onto look at what might be a healthy diet for a healthy planet; lots about more traditional diets, local food and organic farming that regenerates the soil and sequesters carbon. This is not the blog to go into this topic in any depth but the issue of food has been a constant challenge for me - so many varying opinions as well as recognising the impossibility of a one diet fits all approach. 

I also wanted to note that many of the 'cancer diets’ recommended rely on foods that are carbon-heavy; often travelling many miles or using particular farming techniques. Can we really expect organic blueberries every day all year? Having said that, a healthy diet is usually one with low or no meat and that is usually better for the environment. Then there’s a whole question about how in parts of our society those with more money can afford to live a more healthy lifestyle…..


Preventing illness

Oh my, I hardly want to cover this in this blog as it is another big, big area; there is so much to say about our current lifestyles. Take for example exercise - some have said it might be the single best thing we can do for our health (viii). However as I’ve covered in previous blogs we are not always supported to know what exercise might be good for us (ix). Crazily, despite the outcomes for many cancers being so good if you exercise a certain amount, many of us living with cancer were never given that information. I thought I was doing enough exercise but it was many months later that I discovered what I should be doing to impact most on my health. 
So one of the things I’m doing with others is to see if we can get every medical person in the cancer world aware of the importance of exercise and have more opportunities for people to learn about what exercise they can do (x).

Graph from The Spirit Level
One point under this heading I do want to make, as it is not heard enough and is key in preventing chronic illness. The book ‘The Spirit Level: Why Equality is Better for Everyone' (2009) by Kate Pickett and Richard Wilkinson, points out the "pernicious effects that inequality has on societies: eroding trust, increasing anxiety and illness, (and) encouraging excessive consumption". It shows that for each of eleven different health and social problems: physical health, mental health, drug abuse, education, imprisonment, obesity, social mobility, trust and community life, violence, teenage pregnancies, and child well-being, outcomes are significantly worse in more unequal rich countries. You can see a lot of their info on their website at: https://www.equalitytrust.org.uk/spirit-level
Take the example of obesity - which has been so linked to cancer and rapidly rising to scary proportions - it is fine to talk about support and programmes to help people lose weight but a much deeper issue needs addressing. In the UK, two-thirds of adults are overweight and more than a fifth are obese with childhood obesity also on the rise. The book shows how obesity among men and women (see graph), as well as calorie intake and deaths from diabetes, are related to income inequality in rich countries (xi).


Deprescribing - Opiod project in Frome

I was astonished to learn from the Frome presentations that prescribing is estimated to be 20%—40% and perhaps up to 75% of a practice’s carbon footprint! Other estimates at the Frome conference suggest that 16% of the entire NHS, public health and social care system carbon footprint relates to pharmaceutical products. And of this 16% almost two thirds are due to just 20 medications–Includes atorvastatin, simvastatin and 'sip feeds' as well as most analgesics. Also of this 16% one fifth are due to just one thing – metered dose inhalers (xii).

Opioids are considered good analgesics for acute pain and end of life. Yet amazingly there is little evidence to support their role in chronic pain (xii), there is also no guidance from
the National Institute for Health and Care Excellence (NICE) to suggest that opioids are effective for chronic pain and the Royal College of Anaesthetists clearly highlight the harm they can cause. NHS England have published their proposals for structured medication reviews on all patients taking “high numbers” of addictive pain killers’ AND ‘reduce inappropriate prescribing of drugs known to cause dependency’.

The Frome Medical Practice set up a small project that was able to reduce these prescriptions by 16% and acknowledge there is scope for more. They are considering looking at other medications like Pregabalin, Gabapentin, Morphine, Oxycodone, Fentanyl, Codeine and are looking at inhalers. 

A Guardian article last September highlighted the environmental and financial cost of inhalers (xiii). Frome has started to promote inhaler recycling and switching to more sustainable inhalers. In this country up to 70% of inhalers prescribed by the NHS use metered dose inhalers, which use hydrofluorocarbons to propel the medicine into the airways. These gases are much more potent than CO2. NICE wants doctors to instead follow the Swedish example where 90% of inhalers are 'dry-powder' providing the same medicines without the greenhouse gas emissions. This could reduce total emissions by 4% (xiv).

It seems to me that this whole are of prescribing needs some serious attention, but guess it won’t be easy knowing the power and influence of pharmaceutical companies. In this next paragraph I turn to end of life treatment.


Rethinking end of life?

I recently finished reading the International bestseller ‘Being Mortal’ by Atul Gawande that came out in 2014. In this book he explores the modern experience of mortality and how modern medicine has changed this. The system is often failing us and he shares how, so often we are kept alive for a few more weeks but at a cost to our health and wellbeing that is very significant.

Another example of drugs we could rethink is the research by Professor Swanton; he reviewed 71 new drugs launched in the last 12 years up to 2016. He found that on average they extended life by just 2.1 months (xv). The Academy of Royal Colleges had concluded back in 2014 that palliative drugs were a waste of money which could be better spent on good nursing. Gawande in his book gives many examples of different approaches to end of life including a great story of how a doctor introduced dogs, cats and a 100 birds into a Nursing home and found increases in wellbeing and significant drops in drug use.

One story from Gawande stuck in my mind. Nelene Fox had metastatic breast cancer in 1991 and was terminal.Doctors offered her a radical new treatment of high-dose chemo and bone marrow transplantations. Her health insurance refused to fund the experimental treatment. Fox raised the $212,000 to pay for the treatment herself but it was delayed and she died 8 months after the treatment. Her husband sued the insurers and the jury awarded $89 million and the executives were branded killers. Research ultimately showed the treatment to have no benefit for breast cancer patients and actually worsens their lives.

In contrast another insurer, Gawande tells us, introduced a hospice option where they did not have to forego treatment. A two year study found the number of patients opting for this jumped from 26% to 70%. The surprise to the company, but perhaps not to readers here, was that they visited the emergency room half as often as the control patients and use of ICUs and hospitals dropped by more than two-thirds. Costs fell by a quarter. The conclusions were that people who were able to talk through options with someone experienced and knowledgeable were far more likely to die at peace and in control of their situation.

What is interesting in these examples is that the alternatives often have far less impact on the environment but are also healthy and better for us.


Russ cartoon
Rethinking services

End of life is not the only area that needs attention. Hilary Cottam in her book ‘Radical Help’ about the reimagining of the Welfare State for the 21st Century, has some good examples. One of the deeply disturbing parts of her book is to read her chapter on experiments in the NHS. Some of these were wonderfully successful liek the one mentioned above, saving money and delivering better care, yet commissioners repeatedly failed to find the funding. GP Dr Andy Knox in a great article. 'Reimagining Health and Care – An Apocalyptic Moment?’ (xvi) poses some useful questions like: 'How do we design a system that starts with the good life, enhances community well-being, enables better collaborative care within and from communities themselves, whilst being able to respond to real need?’ Certainly in any rethinking sustainability needs to be at the centre.

As someone who is fortunate to work for a charity that is helping build more welcoming communities I recognise the huge value of people coming together to share their interests and passions. Indeed it is more connected and resilient communities that seem to be fairing better in Covid-19 and will fair better in coming impacts of climate change. Building more welcoming inclusive communities is a big big part of the answer to tackling the impact of climate change - it is also when communities come together they can make the changes that are needed.A blog coming soon on this...

In recent years research has shown us the huge impact loneliness has on our health(xvii). We know about the benefits of coming together; one of the key determinants of health is about our connection to family, friends and out community (xviii). Anecdotally just this week some of the members of the Wigwam Cancer Support Groups I am helping to establish with the charity Yes to Life, have said how the group has been a key part of their healing (xix). 


Social Prescribing
 
See blog
I’ve blogged before on social prescribing (xx) but I want to mention it again here as it is part of the Green Impact Toolkit. It can have a part to play in linking people to others and to activities that can improve health outcomes. In many areas this has proven to be positive but in my blog I did note some warnings that to some, some schemes have been likened to 'anti-social prescribing’! 
In Frome it looks great from the presentations and they now have 400 local groups, over 1,400 connectors signposting folk to groups and more and 198 Talking Cafes each year where people can signpost to support and make friends. Measuring the impact on carbon will no doubt be very difficult but certainly reducing medication and reliance on health services has got to be good.

Lastly it is worth seeing this short film made by Stroud-based Ecotricity. It is about Frome Medical Practice’s work and includes mention of other practices they are doing to reduce their carbon footprint like recycling: https://youtu.be/6UjxMAVpV7U

So come on Gloucestershire what can we do?

Notes

(iv) Green Impact for Health Toolkit: https://www.greenimpact.org.uk/giforhealth
(viii) See video: https://youtu.be/aUaInS6HIGo
(xii) “WHO analgesic ladder: a good concept gone astray” Ballantyneet al., 2016) From 1998-2018 opioid prescribing has more than doubled in the UK (Curtis et al., 2018) and NHS reports: https://www.sduhealth.org.uk/search/resources.aspx?q=primary+care&zoom_query=GPs

Sunday, 22 December 2019

Fear; Part three ‘Ego, awareness and purpose'

 Living with cancer has made me more aware of every little blip in my health. I had an ache in my hips. It passed but I was wondering has the cancer spread to the bones? More scarily I had a marble size lump in my armpit that went away in three weeks, but had me thinking it was possibly in the lymph nodes. Fear.

Even as I wait in oncology it is interesting to see that the signs or other aspects of the visit that can increase my own fears. The radioactive sign on the door or an innocent poster about scalp cooling. Or the large crowded waiting area with quiet people; some not wanting to make eye contact. Fear.

In my last blog on ‘fear’ I had a short clip of Sophie Sabbage saying; “If you don’t take hold of your fear your fear will take hold of you.” She talks about people dying of fear and shock and the need "to pass through it (i).” Her books and workshops are a wonderful help and I again strongly recommend them. It is not about suppressing fear or losing all our fear - fear is a survival mechanism - the problem comes when it is part of our conditioning. 

At Sophie Sabbage workshop in London talkingfear
In the last two ‘fear' blogs I’ve talked a lot about how a culture of fear is being perpetuated. Even health service doesn’t always help. It seems to be less about keeping healthy and more about looking for illness to treat; this feels more fear-based and many of us can slip into what can feel like victim mode.

I recently caught Anita Moorjani being interviewed in a youtube talking about fear and what you can do (ii). It was a wonderful reminder that I still need to do work ahead of starting radiotherapy at the end of January. She is one of those inspiring people and I heartily recommend her first book, 'Dying to Be Me'. My partner came across it in the German clinic waiting room ahead of my transurethral hyperthermia treatment (iii). In that book, which we’ve since bought, Anita tells her story, how in 2006 she fell into a coma as her 4-year struggle with cancer was coming to an end. While doctors tried to attend to her body she entered into a near-death experience where she discovered one of life’s greatest truths: "Heaven is not a destination; it’s a state of being”

When she regained consciousness, her cancer was healed. In her book and the youtube she shares some of what we can do to work with our fear. For example it is easy to say 'don’t fear the fear', but so many of us fear say a treatment or strange symptoms, but know that our fears are only making it worse and that the added fear could lead to worse outcomes. 

Loving ourself

Loving ourself is key - accepting ourselves right now including any fear. It is more important than positive thoughts. But it is not always so easy. How can we best work on it and even love those fearful thoughts? Anita says that only in a place of acceptance can we change.

She goes on to suggest that the next step is to establish what we want instead; how can we create that reality? When we focus on our fear we focus on the opposite of what we want. We have to feel the fear, as that is the way we can come through it to a place of calm. And then, understanding that if I love myself, what do I want to be different? We need to focus on bringing what we want rather than focusing on disease. She argues this is not a war on cancer, it is not about irradicating sickness but promoting wellness. See my blog and short film here saying very similar about us not battling with cancer (iv).

Anita's new book, “What If This Is Heaven?”, looks at the cultural myths that impact on our daily lives. Myths like, “We get what we deserve” or “Coincidences are just coincidences”, are often accepted as truths without questioning. Anita’s experiences have allowed her to see heaven not as a physical place but as a state of mind, right here and right now. By freeing ourselves from these myths that are falsehoods "we can leave fear, heartache, and self-imposed boundaries behind and instead live lives full of purpose and joy”. I’ve already ordered a copy of this second book as this chimes so true with my own thoughts.

In her first book I remember reading one of the last chapters where she talks about how the external world mirrors what we feel about ourselves. And wow, is it difficult for many of us not to be disturbed by the world at the moment. I covered a bit of that in my blog and film with Heinz Bude (v), who I met in Bergen earlier this year - although since then things seem even more challenging!!

Anita Moorjani writes: “By letting go of any negative self-judgement, we allow our world to transform; and as it does so, we’ll be able to feel greater and greater trust. The more we are able to trust, the more we’re able to let go of trying to control the outcome.” This isn’t about negative thoughts attracting negativity into life; that isn’t necessarily true. It is more about emotions than thoughts. Similarly as I covered in the previous blog about fear, attracting positivity is not simply about being cheery and upbeat (vi). As Anita says 'being true to ourselves is more important than just trying to stay positive!’

But hey, where does that leave the world? I am still trying to get my head around all this!


More on loving ourselves

Loving ourselves makes sense but isn't always so easy in practice. I was interested to see that when we are young so many of us are taught not to be egotistical, not to have an exaggerated sense of self-importance. This can lead to us mistakenly suppressing our egos; that ’self’ that is distinct from the world and others selves. 

Yet to love yourself you must love your ego. We need the ego but also we need awareness or an awakening. Ego and awareness are different. Anita describes this in the youtube, how we must embrace our ego to know how to take care of ourself and awaken ourself to others. She says if our ego is poor but we are aware, then we can’t protect our self. For example as a 'people pleaser' we might do things out of fear of people not liking us. If we have the opposite, where our ego is high and we have no awareness then we are egotistical. If both are low then that leads to depression, addiction or escapism.

Sophie slide from Penny Brohn AGM 2019
So we need to love our ego and have awareness. Then when we are helping people we are doing it out of self love and the more that happens the more it will nourish us. This isn’t the blog to go into how we can do that - there are loads of books on it - but it must surely start with recognising where we are at (see slide left) and where appropriate learning to say no to the things that are not for you or when you are just doing it to make others happy.

Indeed the more you love yourself the more you will do the things to honour who you are. Loving yourself means uplifting yourself, keeping your energy high, doing things that make you happy and the more you do that your very presence uplifts other people. In contrast if we are always beating ourselves up for not being good enough or doing the right things, our energy is drained and quite often this then has a negative impact on other people’s energy. 

Finding our purpose

Many of us spend too much of our lifetimes being something we are not. Anita says don’t focus on loving yourself, don’t focus on getting rid of sickness instead focus on what you would do if you do love yourself. We all have a purpose and the way to find it, is to be ourselves: "to be who we are”. Indeed in all spiritual wisdom there is something along the lines of “know thyself”.

I’ve mentioned Kelly Turners’ excellent book, ‘Radical Remission’ (vii), well in that there are nine key factors that she has found that can unlock pathways to dramatic healing. Number nine in her book is ‘Having Strong Reasons For Living’. She notes, similar to what both Anita Moorjani and Sophie Sabbage say, that "allowing emotions to flow in, through, and out of us - as opposed to letting them get stuck in our minds and bodies - is vital for our health.” It is through enough desire for life, rather than complete fearlessness, that sees us through; a desire to live long but not avoid death at all costs. 

A key question Kelly Turner asks her patients is “Why do you want to stay alive?” Kelly Turners’ book has some great suggestions for action like writing down reasons to live, writing your ideal obituary, listing current reasons for living plus an exercise to find your calling.

Lots more I want to write but am grateful to be having another look at fear and what helps with it - no more time now - I don't think it will be the last visit to writing about this topic!

Notes

(i) https://myunexpectedguide.blogspot.com/2019/11/fear-part-two-what-can-climate-change.html
(vi) https://myunexpectedguide.blogspot.com/2019/11/fear-part-two-what-can-climate-change.html
(vii) https://myunexpectedguide.blogspot.com/2019/05/best-three-books-when-you-are-first.html

Wednesday, 20 November 2019

Fear; part two ‘What can climate change and cancer teach me?'

Found on a beach near Cardigan, South Wales
Earlier this year I started a series of blogs looking at fear but I didn’t get further than the first blog as the subject challenges me on many levels. In the previous blog I had just met sociologist Heinz Bude whose book ’Society of Fear’ shows how fear is a growing part of our lives. 

I recognise that fear is a necessary part of our survival, but now we all know about every possible danger and threat, there are so many of us are living lives that are full of fear. Barry Glassner writes in his book, “The Culture of Fear”, about how specific fears are created and sustained by the media; often with enormous discrepancy about the reality of what might happen. The media seem to use this constant message of doom to keep us watching, reading or listening to their news. The disturbing thing is that fear encourages intolerance, racism and actions by authorities that are often not in our best interest. Worse still when it comes to some of our most serious threats, our media is silent.

Russ cartoon
Someone asked me recently what was my biggest fear?

I think they were expecting that cancer would be my answer, but my response came straight out; 'Climate Crisis’. 

My generation has failed, and failed spectacularly. Some might have heard about Professor Jem Bendell’s paper last year; the most downloaded paper on climate change (i). He analysed the latest studies about climate change and its implications and writes in the introduction; "That synthesis leads to a conclusion there will be a near-term collapse in society with serious ramifications for the lives of readers.”  Fellow Green Party member, Dr Rupert Reed, wrote a very slightly more positive response (ii). However both reports are beyond bleak. 

Fear makes me hesitate to even to write this blog. Fear can shut people down but it is also a necessary response that activates people to recognize danger and take action. 

Russ cartoon
Following Extinction Rebellion (XR), Greta Thunberg and the school strikes, we are hearing more in our media. The recent United Nations Intergovernmental Panel on Climate Change report highlighted the calamitous difference even a fraction of a degree above a rise of 1.5C can make to ecosystems and all our lives. The Met office have warned we could reach 1.5 within five years rather than some reports that suggest twelve years (iii). To have any hope of holding at that disastrous level we would have to cut emissions by 45% by 2030. Read that line again. This is so big. Yet there is so little leadership and we fail to even reach most of the targets to which we have previously agreed. The science is done. We are in a climate and ecological emergency. There are no words to describe the horrors we risk. So is it any wonder that we are finding that climate change is affecting many people’s mental health? (v).

So why write and share this in a blog about cancer?

I think because, like with my cancer - and yes wow,  the fear around cancer can be huge at times - I need to find a way to let in hope. Getting cancer was almost like a second potentially life-threatening diagnosis, the climate crisis being the first. So I want to start to explore more what these two have got to teach me?

Russ cartoon
Rebecca Solnit (iv), author of a great book, ‘Hope in the Dark’ writes: "Hope doesn’t mean denying these realities. It means facing them and addressing them by remembering what else the 21st century has brought, including the movements, heroes and shifts in consciousness that address these things now." She quotes Patrisse Cullors, one of the founders of Black Lives Matter, who said; “Provide hope and inspiration for collective action to build collective power to achieve collective transformation, rooted in grief and rage but pointed towards vision and dreams”

We can have both grief and hope. 

Hope is not about just being optimistic, just as despair is not the same as being without hope. Vaclav Havel writes: "Hope is not the conviction that something will turn out well; but the certainty that something makes sense, regardless of how it turns out." A despairing person may still act, perhaps with even more determination because of their dire situation - and isn’t this what we are seeing with many of those who are prepared to get arrested with Extinction Rebellion? I think, what we need to be worried about is hopelessness and the lack of any meaning. In contrast hope is all about meaning.

Dr Catherine Zollman, Medical Director of Penny Brohn Centre, talks about realistic hope as the ‘sweet spot’ on between false hope and false hopelessness. Getting to grips with realistic hope is to understand and accept uncertainty with resilience – essential when facing life-changing or threatening situations. She says being hopeful is an essential part of being human (vi). 

This is all so relevant to my own cancer journey. The self-help book shelves groan with the number of books telling us if we be more positive anything is possible. We seemed to have bought this line well and truly. Many times people have said to me 'you are so positive, if anyone can beat this, you will.' This is all so well-meaning but misses a crucial point - and indeed implies that if you die you have not been positive enough.

Author, Sophie Sabbage, wrote a recent article entitled, "Don’t tell me to be positive... when I’ve got cancer”. She wrote about how this positivity is 'stressful and unsustainable’ (vii); "Positivity, like negativity, is an attitude. We think we have to be positive for fear of being negative, to belong and be liked, to conceal our insecurities in a world of shiny smiles on Facebook and Instagram. Where negativity paints dark clouds on blue skies, positivity paints storm clouds pink. One wallows in pain, the other denies it. Neither represents the half-dark, half-light nature of reality, the sometimes-up, sometimes-down nature of the human condition.”

In the West we have forgotten the value of so-called negative emotions, such as grief, anger, and fear. Each of these have lessons to share with us and when understood they can be key in helping us move more towards our more authentic selves - where I believe healing lies. Yes of course changing our thinking can change our feelings, but it's also about being true to ourselves.

Sophie writes: "Let’s weep together in hospital waiting rooms and take hold of our fear so it doesn’t take hold of us while we’re smiling for the nurses. Because inside our fear we can find what we’re willing to fight for. Inside our rage we can find what we stand for. Inside our despair we can find what we long for. There is no flow without ebb.”

In my 40 second film below there is a clip of Sophie Sabbage talking at Trew Fields this year about ‘fear’. Both her books are wonderful in helping navigate that territory; as she says ‘we need to take hold of our fear and pass through it’.


Renee Lertzman, in her book “Environmental Melancholia”, talks about unprocessed grief about ecological devastation as being a big part of what prevents people from tackling environmental challenges (viii). She says we need to have conversations about climate change that allow space for people to acknowledge and process their feelings. This is what many who are part of Extinction Rebellion have been doing or trying to do. Indeed XR has been a great guide for me with my cancer and the fears around it. Many of us living with cancer also need to have conversations that help us process and acknowledge our feelings. For me that has been crucial in helping take actions to build a protocol that will heal me. 

I also agree with Bill Turnbull in his Channel 4 documentary this month about living with prostate cancer - he says for him says 'love takes you through the fear'. Certainly the love from my partner, friends, work colleagues and even strangers has been extraordinary.

Perhaps one of the most useful bits of advice I've been given is about living my life now and not waiting - as Cancer Thriver, Nick Parker said in my last blog (ix): ‘Remission is not the goal, life is’. This reminds me that I once had a poster with a great quote by Paul Goodman; “Suppose you had the revolution you are talking and dreaming about. Suppose your side had won, and you had the kind of society that you wanted. How would you live, you personally, in that society? Start living that way now!” 

Seen outside Wigtown bookshop
I was going to finish with that quote but I wanted to share one more thought about the parallels between climate change and cancer - both are a direct result of our lifestyle. Furthermore the progression of climate change and the delayed effects of our emissions give us a sense of unreality - this is so like a cancer diagnosis before we see debilitating symptoms. It seems to me all this is a huge opportunity to bring changes to the way we live that enhance, not just in our own health but also that of the planet. I want to write more but must stop as this is too long already!!

And I strongly urge any folks reading this to find support; particularly around fears. Many of the cancer charities offer helplines and XR have great groups across the country that help explore fear and grief.


A look at hydrogen

Some 6 years ago I met Jan Beute and he was very persuasive about how useful hydrogen can be in treatment of cancer. See my post then:  http...