Friday, 10 January 2025
Feeling creative? Could you help with our next cancer and art magazine?
Sunday, 22 September 2024
Latest edition of 'cancer art magazine' Flourish launched
We just launched this week the latest issue of Flourish; our creative magazine by and for the cancer community. It’s a beautiful issue tackling our complex relationship with our bodies through a stunning array of art, poetry, photography, and personal stories that are both empowering and deeply moving.
It is a great privilege to be part of publishing this magazine - do take a look online - and some real life copies available across Bristol/Gloucestershire area in oncology wards and GP surgeries. However this latest issue we were unable to publish as many issues as usual - but hopefully back to normal with our next issue in new year with the theme 'mind'. Take a look at latest issue for details of how you can help contribute to our next issue.
See more at: https://yestolife.org.uk/news/issue-5-of-flourish-magazine-the-body-issue-is-out-now/
Direct for the magazine: https://yestolife.org.uk/wp-content/uploads/2024/09/ISSUE-FIVE-FLOURISH-MAGAZINE.pdf
Sunday, 5 December 2021
A label is more than a label
We have talked lots in past about the placebo effect...the power of the mind...well I loved hearing about this test where participants had their hormone levels measured before and after consuming different types of milkshakes. One of the shakes was labelled as huge in calories - a super sized indulgent shake while the other was labelled as fat free and guilt free.
It was exactly the same milk shake. Yet the results show that the participants hormone levels reflected what they believed to have just consumed and were wildly different depending on which milkshake they had. This is more evidence that our mindset can meaningfully impact on our physiology. You can check out the research by Alia Crum et al at: https://pubmed.ncbi.nlm.nih.gov/21574706/Friday, 14 May 2021
Building a community of peer-led support groups
Building our Wigwam community
Our Wigwam community is growing, but what do we need to give attention to if we are to build a resilient community?
I have been fortunate to join community activist, Bruce Anderson on several day workshops to explore what makes a community welcoming and strong. His work with many people has led to identifying 'three glues’ of community that interrelate:
1. Everyone has unique gifts and capacities.2. It is the responsibility of the community to welcome those gifts.3. Creating hope.
It is when each of these three glues get attention then building community becomes easy. People want to connect. In this blog I want to cover them briefly as I think they have a big part to play in how we run our Wigwam groups.
'Rediscovering Welcome'
Joining a new group or attending an event can sometimes feel unnerving. We may not know the rules, the other people attending seem to already know each other and we might be anxious about making mistakes. If we are having a difficult time in life in general then this can make attending a new group or event even more difficult.
In many places, the power of recognising and welcoming someone new can be overlooked. The “welcome” seems to have been lost, reduced to insignificant gestures: a duty rather than something much richer. Perhaps like some of the hospitality industry where strangers are welcomed only if they have the money and credit cards. It seems we have moved somewhat away from the original old English meaning of welcome: ‘Wilcuma’ – to accept the stranger with pleasure.
Yet in some cultures the power of ‘welcome’ is still held held in very high-regard and the stranger on the doorstep is welcomed as one of the highest deities; there is, for example, an Indian saying that ‘Guest is God.’ Author and Patron of Yes to Life, Sophie Sabbage (ii) describes the Zulu greeting ‘Sawubona’, which means ‘I see you.’ The response is ‘Ngikhona’, said looking into the other’s eyes, means ‘I am here’ (iii). As Sophie says, this is about how ‘our hearts need to know we are visible to others as acutely as our bodies need food, water and rest.’
Creating welcoming spaces is a key step to ensure we can all feel a sense of belonging and worthiness. Shining a light on our welcome can help us uncover, restore and re-grow our welcome. Parker Palmer, a world-renowned writer and activist (iv) says that it is not about training people to be welcoming and hospitable, you just have to uncover people’s barriers to it - or rediscover it. We sometimes need help to do this; 'to see again with fresh eyes'. We are often too busy and have other things on our mind, but by recognising and removing the barriers we can rediscover the full wonders of welcoming.
One woman who spoke to me about the Wigwam Support Groups said she had not had the courage to phone for some months. She shared that she was not sure what to expect and whether the groups would be right for her, whether she knew enough or would fit in. Yet when she managed to get over her initial concerns and talk to one of us, the fears melted away. She even said it was the 'warm welcome’ that helped her take the next steps. Now we don’t get that right all the time, especially as what one person might find welcoming, may not be right for another.
Definition of Welcome (Bruce Anderson): ‘The initial and ongoing interactions, with people and environment, that result in a feeling of belonging, and a willingness to engage.’Bruce Anderson’s work with organisations around welcoming often starts with looking at where we learnt how to be welcoming and a chance to share a story when people felt unwelcomed. Employees are given the space to look at many different aspects of welcome. For example, signage; if the place is not welcoming on the outside, then people arrive on edge wondering how it will be. Is it easy to know what to do when you arrive? How are the phones answered? Similar questions can be asked of any groups including Wigwam even where they are already providing a warm welcome. There is often more we can do, especially thinking about the welcome to new members (v).
Unique gifts
To welcome means to really ‘see’ the person walking through the door, to see their gifts and to be open to receiving help, wisdom and guidance from the person we are meeting or helping. There is a wonderful piece of old wisdom that says that helping is similar to breathing; you have to breathe in as much as you breathe out if you want to sustain your life. Indeed I have in the past thought I was there to help someone, only to find that it was my life that was being changed by the interactions.
Bruce Anderson writes on his website: “Cultures and faith traditions, many centuries old, used specific methods to identify and use gifts in their members. Now, modern neuroscience and positive psychology have backed up older wisdom traditions by proving that individuals thrive when they are able to find meaning in their lives by knowing and giving their gifts.” What are gifts? They are all those things that makes us unique; our passions, interests, experiences, skills and more. They are the tools that help us grow our community. It can take time to recognise gifts and support to help people offer them - all the while remembering that “A gift is not a gift, until it’s given.”
“Every living person has some gift or capacity of value to others. A strong community is a place that recognises these gifts and ensures they are given. A weak community is a place where lots of people can’t or don’t give their gift.” Jody Kretzmann, ABCD InstituteI have been struck time and time again by the warmth and generosity of Wigwammers; their willingness to share their experiences and knowledge, to support one another, our many Forum experts offering their time free, people writing blogs for us or sharing social media. How can we do more of this?
Creating hope
The third ‘glue’ of communities is hope, and how you can sustain it by placing it at the heart of the whole community. This could be a whole blog in itself and is such a key part of going forward.
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Found on beach, Cardigan, Wales |
“Hope is not the conviction that something will turn out well but the certainty that something makes sense, regardless of how it turns out”. Vaclav HavelThis blog hardly does justice to the idea of these three glues but I hope it gives some food for thought as to how we can continue to build our Wigwam community. We are open to suggestions, thoughts, ideas - and of course ‘gifts’. In further blogs it would be great to explore more about how we can create safe spaces for people to share and grow.
See more about Wigwam at: https://www.wigwam.org.uk
Notes & references
(i) For further information visit: https://www.coregift.org/ and https://www.communityactivators.com
(ii) ‘Lifeshocks, And How to Love them’ by Sophie Sabbage 2018
(iii) Terry Tillman writes about this connection and the use of this greeting in the Sci-Fi film, Avatar. He says: ‘The eyes are the windows to the soul. When we connect with the soul, who we truly are, all things positive are present—joy, acceptance, compassion, understanding, cooperation, loving, peace of mind, humor, ease, simplicity and more. That is the nature of the soul. And isn’t this what we truly want, a positive experience in life? Add these moments together more frequently, and for longer periods and we have more of what we want.’ See more at: http://www.finerminds.com/consciousness-awareness/samburu-greeting-terry-tillman/
(iv) See more at: http://www.couragerenewal.org/parker/
(v) ‘Our Door is Open: Creating Welcoming Cultures in Helping Organizations’ audio cd by Bruce Anderson and Community Activators. There is also a much earlier paper which doesn’t, in my view, fully capture the richness and possibilities that are covered in the audio: ‘Creating Welcoming Places Workbook’ (2004) by Bruce Anderson and Dean Paton: http://www.communityactivators.com/downloads/WelcomeWorkbook.pdfBruce talks about how a leader is needed to champion this welcoming work, but that it is also crucial that everyone agrees with the aim to be more welcoming. Bruce sees four domains or areas of focus that are crucial in helping to build a welcoming culture. Here are some notes from his work to give a flavour of those domains:• Storefront and building interior; if the place is not welcoming on outside people arrive on edge wondering how it will be. Is it easy for them to know what to do? How is the signage? Do the signs describes what to do, not what we don’t want people to do? How is the entrance? Water to drink, flowers, paintings, cleanliness, lighting and more can all be important. How welcome would you feel?• Customer processes; this is all the interactions with people, like how the phone is answered, the first greeting, how accessible is information about the group or organisation and whether waiting times be reduced. As Bruce says, ‘a person feels welcome to the extent they feel respected’.• Community Engagement; how welcoming is the group or organisation to other businesses and others in the community?• Employee support; employees have to feel welcomed in their own organisation if they are to be welcoming; this is about recognising gifts, induction processes, rituals for leaving, and how to challenge employees who do not act in a welcoming way.
Friday, 4 September 2020
How to embed new behaviours
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Juicing every morning |
The course was great at helping folk explore where they are and changes they may wish to make. However I always get a little cross with all that, as so many of these approaches focus on the individual - and this seems to play into wider societal views that blame individuals for problems (ii). So for example overweight people are fat because of their personal choices about eating and exercise. This ignores the role of economic status, upbringing, genetics, neighbourhoods being less walkable, the explosion in cheap fast-food and processed foods, and the way parents talk to their children about weight - all of these have an impact on obesity. It is also over forty years since Susie Orbach wrote, ‘Fat is a Feminist Issue’; we really don’t seem to have learnt much over those years (see Suzie comment in The Guardian here) (iii)!
A research paper in 'Health Affairs’ they explore this idea of personal responsibility, they write (iv): "The notion that obesity is caused by the irresponsibility of individuals, and hence not corporate behavior or weak or counterproductive government policies, is the centerpiece of food industry arguments against government action. Its conceptual cousin is that government intervention unfairly demonizes industry, promotes a “nanny” state, and intrudes on personal freedoms. This libertarian call for freedom was the tobacco industry’s first line of defense against regulation. It is frequently sounded today by the food industry and its allies, often in terms of vice and virtue that are deeply rooted in American history and that cast problems like obesity, smoking, heavy drinking, and poverty as personal failures.”
The same can be said of the UK. Boris Johnson has just unveiled a ‘Better Health Campaign' to combat obesity - there are some useful bits like banning junk food ads before 9pm and barring 'buy one get one free’ on some unhealthy foods. However all this is more focus on personal responsibility - it doesn’t look at attacking the root causes of obesity—poverty and inequality. And hey what’s with their idea of calorie counts in restaurants - for a start calorie counting is not that useful with obesity (v) and I can’t see how that is going to have a significant impact on behaviour.
In a previous blog I noted the links between inequality and obesity in the research by Kate Pickett and Richard Wilkinson (vi). The government does at least acknowledge that “obesity is more common in people living in deprived areas”, but their focus is all about reducing people’s weight, as opposed to reducing their deprivation. In another previous blog (vii) I covered Cancer Research UK's campaign about obesity causing cancer - that again framed obesity as a lifestyle choice and encourage weight stigma. Yet we know ‘fat shaming’ has a counter-productive effect and leads to further weight gains. Long-lasting change is most likely to happen when it's self-motivated and rooted in positive thinking.
The ‘Healthy Lifestyles’ course didn’t look at any of these wider issues and similarly messages in the media are too often simplified down to the personal responsibility approach - and of course at the end of the day that is how, as individuals, we can affect personal changes. However isn’t it time for a more holistic approach that seek to change lifestyle habits by looking at the psychological and physical factors that underpin them but also recognise those wider factors?
A Model of Change
One of the interesting ways of accounting for success and failure in making healthy changes, is the transtheoretical model (TTM). TTM is one of the most widely used and sees change as a process not an event - although it is not without criticism. In brief you can go from precontemplation to contemplation to preparation to action to maintenance where the changes adopted to practicing it for the rest of your life. Understanding where you are in that process can help look at what intervention is best at that point - and therefore move to the next step. Although it's acknowledged that these stages are not as discreet as the model suggests; folks come in and out of the process, relapse and restart (viii). This is not for this blog as you can read lots about this in many places.
Making self care habitual
As noted the ‘Healthy Lifestyles’ course also didn’t really get into more specific tools to embed new behaviours - possibly not being enough time in the session? Yet it seems to me this is possibly one of the more valuable ways we can support ourselves and others? B.J. Fogg writing in the acclaimed book, "Tiny Habits: The Small Changes That Change Everything” (ix) says 3 things will change your behavior in the long term:
Option A: Have an epiphany
Option B: Change your environment
Option C: Take baby steps
He writes on the website: "Creating an epiphany is difficult. So rule out Option A unless you have magical powers—I don’t. On the other hand, Option B and Option C are practical. And they can lead to lasting change if you follow the right program".
1. Tagging. This is where you ’tag’ your new behaviour onto an existing behaviour. So for example tagging meditation onto doing the school run; using time sitting in the car after dropping the children off. Or as in my case, a self massage after a shower. This is such a brilliant way of embedding new behaviours.
4. Positive mindset. We can change reality by changing perceptions - one example that I remember is Victor Frankl, who maintained his body weight in the concentration camp by creating his own reality. So are there ways to turn negative thoughts into positive ones before going to sleep?
Lastly it is said that it takes 21 days to structurally alter the brain so that a new behaviour becomes a habit. Good luck!
(iv) https://www.healthaffairs.org/doi/10.1377/hlthaff.2009.0739
(v) https://www.scientificamerican.com/article/another-misguided-war-on-obesity/
and https://www.anhinternational.org/2018/06/28/type-of-fuel-not-the-quantity-that-really-matters/
(vi) https://myunexpectedguide.blogspot.com/2020/07/cancer-treatment-and-climate-change.html
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