Dale Atkinson, Stage IV cancer patient | Non-Executive Director and Board Advisor | BSIO Exec Committee | Patient trust, risk and governance | Writer | Speaker: HIMSS, NCIM, Y2L | Ex-HSBC, DB, Schroders
Today is my last day of cancer treatment. And... this morning, Parliament finally published my petition 🎉 The timing couldn't be better. It's quite a bit softer than I first wrote it.
After a lot of back and forth, one line survived that I wasn't prepared to lose: "We believe other promising complementary and repurposed treatments deserve the same scrutiny."
Jane McLelland and Robin Daly MBE have pushed for this far longer than I have.
Here's why it matters. Around half of people with cancer use a complementary therapy at some point. Up to three quarters of them don't tell their doctor.
The most common reason? Nobody asked. So nobody records what we take, what it interacts with, or what happens to us. That isn't a safety system. It's a blind spot, and the system has chosen to protect its protocol over the patient.
The petition is the door. Here's what we want behind it:
- An All-Party Parliamentary Group to push for an independent systematic review
- A proper record of what patients are actually doing outside the system, and what happens to them
- Patient safety as the priority, not the protocol
And the one I'd fight hardest for: chemo-sensitivity testing. Right now, most people are started on the maximum dose their body can tolerate, then everyone waits to see what happens. A review of more than 300,000 patients found 42% of people on cancer drug treatment ended up in hospital. In clinical trials, treatment-related admissions were 16%. In the real world, 29%.
We already know testing first works. Since 2020, the NHS has tested patients for one gene before giving one of the most common chemo drug families. Carriers get a lower dose, and fewer of them end up seriously ill.
One gene.
One drug family.
Why stop there?
In 2018, a team at the Royal Marsden grew mini-tumours from patients' own biopsies and tested the drugs on them first. In that study, when the test said a drug wouldn't work, it didn't. Every time. Since 2004, the main oncology guidance has said trials of these tests should be a priority.
Twenty years on, they still aren't routine. Then full genomic testing, with research into which treatments work against which genetics. I paid for that privately. Whether you get it shouldn't depend on whether you can afford it!
At 10,000 signatures, the Government responds.
At 100,000, it's considered for debate in Parliament.
But don't sign because you like me. Read it. Check the evidence. Challenge it. If it's the cancer care you'd want waiting for you or someone you love, sign it. Then tell somebody else why you did. Go to: https://petition.parliament.uk/petitions/783841
