So I heard on the news this week that the UK National Screening Committee (UK NSC) finalised its recommendations on prostate cancer screening, limiting this to men with a known BRCA2 gene variant who have relevant family history. Sadly this recommendation excludes the vast majority of men, including those at highest risk, such as Black men and those with a family history, and falls far short of what is needed to save lives through earlier diagnosis.
As noted previously in this blog the issue of PSA tests is not straight forward and has led to over treatment in many cases. However it is clear to me that those at highest risk should be part of a screening programme. Do consider signing the petition at teh end of this post.
Here's part of an email with details of the new petition from Prostate Cancer research:
"We are deeply disappointed....But while this is not the outcome we fought for, it is not the end of this campaign. Because of you, we have built something powerful. Over the past two years, more than 300,000 of you signed our petitions. Tens of thousands of you wrote to your MPs. As a result, more than 250 MPs from across political parties have signalled their support for change.You helped unite 18 leading organisations across the clinical, charity and research community behind a shared call for reform, and brought major national newspapers, including the Daily Mail, The Telegraph and The Times, firmly behind this issue. This support has continued over the last few days, with the UK NSC recommendation generating significant national media attention, with coverage across The Times, The Telegraph, the Daily Mail, the BBC, GB News and many others, many expressing strong concern about the implications of the recommendation.
Your support also made it possible for us to commission an independent review of the UK NSC’s modelling by the York Health Economics Consortium (YHEC). That review identified serious flaws in the model underpinning this decision, including assumptions that do not reflect how screening would work in practice and a failure to account for modern MRI-led diagnostic pathways.
Together, we have shifted this debate further than ever before. And that progress matters.
While we did not secure the outcome we fought for, we have achieved an important breakthrough. For the first time, the UK NSC has committed to keeping their model ‘alive’ – meaning it can be updated as new evidence emerges and the decision can be revisited without waiting another five years.
This is a significant shift. It means the door is not closed for a generation, and that is because of you. Over the next two years, we will look towards opportunities to generate new evidence that could challenge this decision and secure a broader, risk-based screening programme.
At the same time, we will continue to fight for men in other ways, pushing for delivery of the National Cancer Plan, accelerating access to better diagnostics through the innovations we fund, reaching more men through our education and community programmes, and expanding Prostate Progress, our national data platform, to transform understanding of this disease.
One thing you can do today is help to ensure this decision on screening is given an opportunity to be scrutinised by MPs. We need more people to the Official Parliamentary petition to get it to 100,000 and trigger a debate in Parliament.
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