My Unexpected Guide; learning from cancer
Philip shares his journey to wellness
Saturday, 2 August 2025
Exercise is Medicine
Thursday, 10 July 2025
Supplement and Therapy database and info
And if looking for a practitioner or more info on a therapy check out Yes to Life's Directory at: https://yestolife.org.uk/life-directory/
By clicking on the Yes to Life heading 'Resources' you can also find 10 years worth of weekly radio shows plus a number of podcasts looking at particular therapies.
Wednesday, 9 July 2025
Campaign for oncology drugs for poorer countries
Professor Ifeoma Okoye, from Nigeria, said: “Every day, I watch patients walk into our cancer centres with more fear of the cost than of the disease. The burden of out-of-pocket expenses for chemotherapy, imaging, and pain relief crushes families and robs them of dignity. The effort by Inspire2Live to democratize access to essential oncology medicines is a necessary disruption to a broken system. We must move from global empathy to equitable action. Affordable cancer drugs are not charity—they are a human right.”
paid for the biological drug, I would certainly have died. The drug shrank my tumours sufficiently to allow surgical resection. Eighteen years on, I am so grateful to be here for my family. I want others to have the same chance that I had.”
The World Health Organisation (WHO) updates its essential medicines list biennially. There are 83 essential medicines for cancer, of which 13 are patented. Cancer drugs are generally not available in Africa, but could be made available, with no huge financial loss to the pharmaceutical industry, as was done before for HIV medicines. I2L believes that countries could be allowed to manufacture generics, even though drugs are still under patent, keeping within stringent safety regulations.
We believe that it is inhumane to allow people to suffer and die when there is a known way of
preventing this. We can save lives.
The I2L initiative has the powerful backing of:
• Prof. Mark Lawler, Professor of Digital Health, Queen’s University Belfast.
• Prof. Richard Sullivan, Director, Institute for Cancer Policy and Co-Director, Centre for Conflict
and Health Research, King’s College London, U.K.
• Prof. Carin Uyl-de-Groot, Professor of Health Technology Assessment, Erasmus University
Rotterdam, The Netherlands
• Dr. Wilbert Bannenberg, Founder and Chair, Pharmaceutical Accountability Foundation.
• Prof. Emeritus Ifeoma J. Okoye, Nigeria, Professor of Radiology at the College of Medicine,
University of Nigeria, Nsukka
Peter Kapitein, founder of Inspire2Live, said, ‘We have the assistance of international organizations, global expertise and our feet firmly on the ground in so many countries in every continent. We are human. By nature, we should also be humane. Why shouldn’t we save lives?’
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Inspire2Live (I2L) is the patient’s voice in cancer. The organisation creates more options for a life of
quality around cancer globally, faster. They connect patients, physicians, researchers, government,
insurance companies and the industry to initiate and develop projects for the benefit of the patient.
https://inspire2live.org
Reference Notes:
1. Argentina
Armenia
We have 30 LMIC country members:
Brazil
Bulgaria
Caribbean (consists of 16 countries)
Chile
Indonesia
Iran
Jordan
Kenya
Lebanon
Lithuania
Costa Rica
Croatia
Nigeria
Pakistan
Cuba
Philippines
Egypt
Gabon
Romania
Senegal
Ghana
South Africa
Guinea
Tanzania
Hungaria
India
Ukraine
Uzbekistan
2. PEPFAR President’s Emergency Plan for AIDA Relief
Among the organisations we consult:
3. The Pharmaceutical Accountability Foundation (PAF) serves the public interest by striving
to ensure that medicines and medical technologies are made available in a socially
responsible and sustainable manner. We attach a value to fair pricing and distribution in
accordance with European and international legal standards, and therefore take action to
combat unjustifiable price gouging by companies abusing market monopolies. We seek to
achieve our objectives through the provision of advice and information to governments,
stakeholders professionals and the general public. If that does not help, we achieve our
objectives through the possible legal action around excessively high priced medicines. Our
Articles of Association (in Dutch) can be found here.
Contact information for Media Enquiries:
Peter Kapitein, Founder of Inspire2Live
Email: peter.kapitein@inspire2live.org
Phone number: +31 6 52 49 60 99
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Tuesday, 8 July 2025
New prostate cancer tests
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Less Grey Imaging |
'Less Grey Imaging'; as we know the PSA test is not reliable. MRI misses 20% of cancers and a whopping six in ten men undergo unnecessary procedures. This new technology offers us up to a 20-fold increase in resolution compared to mpMRI, which provides a grey, difficult-to-read image.
It works by injecting a commonly used contrast agent into a vein that contains millions of tiny and harmless microbubbles that travel through the patient’s bloodstream to the prostate. Super resolution ultrasound imaging is then used to track these microbubbles as they flow inside the prostate. Due to the altered blood flow in cancerous tissue, the image highlights previously unseen tumours, enabling earlier diagnosis. 94% of tumours are correctly identified and the technology is cheaper, faster and less claustrophobic than an MRI scan. It is now going to a Phase II trial to take it forward. It cannot come soon enough!
Monday, 7 July 2025
Glucose monitors: useful or not?
There are many ways to avoid a glucose spike naturally, and the best method is to be thoughtful with your food choices. Limit foods that are common sources of spikes such as refined carbohydrates, sugars, and sugary beverages, and instead opt for more complex carbohydrates that have fibre such as vegetables, fresh fruit, brown rice, quinoa, and whole grain bread. Even better, pair your carbohydrates with a source of protein and/or fat for a macronutrient-balanced option.
Other lifestyle habits that can help keep your glucose steady include getting quality sleep, staying physically active, drinking plenty of water, managing stress, and limiting alcohol.
A lot of this is pretty obvious but I guess for me it was still a useful exercise in helping me think about meals again - over the years since diagnosis some good habits slip a little - it was a good reminder even if the research noted above suggests they may not be so useful. Anyone with any questions re this should speak with their medical team - this blog was just my experience.
See blog on Ultra-processed foods being recommended by NHS (??!): https://myunexpectedguide.blogspot.com/2023/04/ultra-processed-foods-recommended-by.html
See blog on best nutrition/recipe books: https://myunexpectedguide.blogspot.com/2024/02/best-nutrition-on-recipe-books.html
Thursday, 8 May 2025
Our latest issue of Flourish magazine is out - cancer and art
Flourish Magazine is a joint venture between integrative cancer care charity Yes to Life and creative health charity Artlift supported by funding from various sources including the Arts Council England. The Magazine aims to explore the benefits of an integrative and creative approach to living with cancer. The magazine is created with the support of our steering group that includes people living with cancer and partners Gloucestershire Health and Care NHS Foundation Trust. Each themed edition features a range of creative responses, expert information and interviews that offer support and represent the diversity of the cancer community.
See latest issue and past issues at: https://artlift.org/artlift-programmes/flourish/flourish-magazine/
Thursday, 27 March 2025
Now at number 19 in top prostate cancer blogs
Up to position 19 from number 26 last year of cancer blogs on FeedSpot - ranked by traffic, social media followers and freshness. It is great to hear as I've not been so active re the blog this year - having said that I've still managed to post fairly regularly and also get nice feedback from readers. Thank you! Check out the other blogs at: https://cancer.feedspot.com/prostate_cancer_blogs/
As I noted last year most of the blogs seem to be linked to organisations or products and it looks like very few take a focus of integrative health ie getting the best from conventional, lifestyle and complimentary approaches.
Exercise is Medicine
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Local artist Russ I should start by saying supplements support healing and can be an important part but (for me) they need to be part of...
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Oh my... this book so resonated with me and was a great read. I learnt lots more about cancer and it's helping me rethink my approach -...
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Well I used to participate in these ‘Blog Hops’ with my last blog, but haven’t done so with this one until now. The idea from Nancy at Na...